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Children and Young People's Participation

Your experience during lockdown - we'd love to hear from you!

We'd love to know your experience during lockdown and your thoughts about returning to school.

1) SEND survey in images- My Lockdown Experience

2) SEND survey in symbols - My Lockdown Experience

3) Survey for primary schools

4) Survey for secondary schools/colleges

We also have a new Inclusive Youth Newsletter written with the help of young people, for young people. Read a copy here or scroll down to find out more!

Our Vision and Aims for young people with SEND (Special Education Needs and/or Disabilities)


We want to hear from you, act on what you say and then let you know what we have done based on your feedback. We want to make changes to things that are important to you ensuring your time is valued.


  1. We want to provide services to young people by listening to young people.
  2. We want you to tell us what you want and then share this with other people in the council.
  3. We will hear what you say and then act upon it making sure we keep you updated on what is happening.

NEW Inclusive Youth Newsletter


Welcome to the first edition of the Inclusive Youth Newsletter! Download a copy here.

This newsletter has been established in partnership by Westminster City and Kensington and Chelsea councils to provide a new platform for young people in the two boroughs with special educational needs and/or disabilities. This newsletter offers the opportunity to get involved with fun activities and to share ideas with other young people and will be circulated monthly. 

In the newsletter is a link to a survey to find out your thoughts on the design and content of the first edition. Included in the survey is a competition to re-name the newsletter, the winner of this competition will receive a £20 Amazon voucher. Click here to complete the survey. There is also a parent survey which can be found here. Alternatively, you can send feedback directly to

For the first edition of the newsletter we would like to thank all who contributed by sending stories and photographs of young people. A special thanks to the Caxton Youth Club, Tresham Centre, Make It Happen and St Quintin Centre. Please continue to share feedback, resources and stories along with images of young people to populate future editions of the newsletter to

A photo competition will be announced in the next edition of the newsletter for all those who contribute images. The three best photographs will be in with the chance of winning a £10 voucher. More details to follow.  

Thank you again for your support and we look forward to hearing from you!


Online resources, games and apps for home learning

Apps and Games:

Brain Parade
Description: a visual instruction app, including flash cards and picture-choosing games, for children with autism and special needs.

Description: a collection of games and resources designed for a range of educational needs and stages. It includes provision for school closure.

Sensory App House Ltd
Description: a range of apps are available for pupils with Profound and Multiple Learning Difficulties (PMLD) or Severe Learning Difficulties (SLD). All are interactive and many do not require significant coordination abilities.

Description: an all-in-one app created to support people with communication and learning difficulties. For verbal and non-verbal learners.

You can find more online resources for home learning from the Department for Education (DfE) here.

What is participation?

“Participation is having opportunities to be part of decisions that are important to you and may lead to changes”.

Definition created by young people at the SEND Young People’s National Conference, 2019.


Why is participation important?

  • You have the right to be involved in things that matter to you.
  • The law says you must have your say.

  • It will help us understand the needs and wants of young people in the local area.  
  • It will help us improve services and understand what changes need to be made. 
  • It will help your communication, confidence and social skills

  • You can meet other young people and create a new and supportive friendship network. 
  • You can be involved in the council’s decision-making process.

  • You can help raise awareness and understanding in the community.

How can I get involved?

There are a few ways in which you can get involved and have your say:

SEND Voice Newsletter Coming Soon – watch this space!


Email us

With any stories, good news, things you’re doing at home, how you are being creative and passing the time, any favourite helpful websites or games you are playing or any tips and advice for other young people while we are all at home.


Complete the following survey


SEND Voice (Young People’s Engagement Group) launching late 2020

This group will meet regularly and will give young people a voice while creating opportunities to be involved in other ways.

Young Auditors will be involved in looking closely at documents and making sure they are fit for purpose and can be understood by young people.

Young Inspectors will look closely at services available to young people with SEND in Westminster and Kensington and Chelsea.

Recruits Crew will support in the recruitment of key staff within the council.

Who can get involved?

Any child or young person:

  • aged up to 25 years that wants to share their thoughts and views with us
  • living or going to school in Kensington and Chelsea and Westminster
  • who wants to help drive change for children and young people with SEND
  • who wants to learn new skills, meet new people and share their opinions with others

Contact for more information

Marianna Lill, SEND Participation Officer for Children and Young People


Phone or Text: 07967 760 095

Toolkits for young people


Moving onto secondary school can be an anxious and exciting time, check out Young Minds for some top tips and BBC Bitesize for a collection of videos.

EHC Plans

As part of their work, young people's advisory group EPIC created a factsheet for young people to explain what an Education, Health and Care Plan is and how it works. There is a video explaining what EHC Plans are. Amy, a member of Council for Disabled Children’s youth advisory group FLARE, has created an incredible resource to support children and young people who have an Education, Health and Care plan (EHCP).

The Local Offer

As part of their work, young people's advisory group EPIC created a factsheet for young people to inform them about the local offer and how it works.

Post 16

As part of their work, young people's advisory group EPIC created a factsheet for young people to inform them what support is available to young people once they reach 16. 


Youth-led advocacy is about supporting young people to speak up and helping them actively take part in the decisions that affect them. This UNICEF toolkit will give you the skills and information you need to stand up for what is important to you. It also includes advice for engaging politicians and the local media.


A quick guide from ‘NICE’ for young people and their families about assessment and diagnosis.  Top Tips and practical resources for autistic young people from ‘Ambitious About Autism’. Molehill Mountain is an app to help autistic people understand and self-manage anxiety. You can use Molehill Mountain to explore the causes and symptoms of anxiety.

The CDC has also put together some useful guides about a range of topics. 

Where to go for Advice and Support?

Advice and Support

Information, Advice and Support Services (sometimes called IASS) can help you with questions about school, college, training, healthcare and getting the right support and home, school or in the workplace. Watch the video which explains what IASS is. There are IASS services in both and Westminster and Kensington and Chelsea

Mental Health Support and Counselling

KOOTH counselling is on online counselling service for young people aged 11-25 years.

Young Minds can offer tips, advice and guidance on how to support your mental health.

Childline provides help, advice, support and counselling services to young people.

Deaf support

The Buzz website provides support to deaf young people and includes information about corona virus discussing top tips for staying positive, corona virus and depression, managing change and also ways to work from home.


You have rights when making decision and choices about your healthcare. This amazing website has lots of videos of young people talking about their experiences and great information on how to use the NHS and take control of the decisions that affect you.


The Youth Legal and Resource Centre in Wandsworth has resources about your rights, including fact sheets about various situations.


Jargon busters can help when the words you are reading don’t quite make sense or contain a lot of abbreviations. They are like mini dictionaries and explain diffuclt language in a way which is easier to understand.

Health Jargon buster looks at language around healthcare and related services.
Policy Jargon buster looks at language around policy, the SEND reforms and strategic decision-making.


For more information on the Participation Works Project run by KIDS.

Our strategy for participation

Here at the council, we want to make sure our strategy for participation is clear. It will follow these five principles:


1.      RIGHTS

All children and young people have the right to have a say about things that affect them, receive information they understand and have the support they need to learn, have fun and be safe, healthy and happy.


Children and young people have the right to information that is accessible, easy to understand and SEND and child friendly. 


Children and young people should be able to give their feedback and communicate their feelings in ways which are appropriate to them. We will use various communication methods including through face to face meetings, group and 1 on 1 meetings, emails, phone calls and text messages and through social media.


Young people will have opportunities to be involved in decision making processes through engagement, inclusion, consultation and co-production.


We will ensure all participation is embedded and overseen through members of the Participation Champions Network, termly reference groups, Child Families Act Executive Board, and anywhere there are other opportunities for young people to be involved.

Last Updated 04/07/2020

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